As you move through your care experience, you will come into contact with many different touchpoints in the healthcare network—from doctors and social workers to case managers, pharmacists and many more in between. Because you ensure that the person in your care is well supported, you are an important resource within this network. But beyond the services and supports you provide to your loved one, we believe that you are also a vital care partner. Your healthcare providers should actively participate in helping to integrate you as a valued member of the care team.
Below, we compare different caregiver mindsets. Consider what happens when your outlook goes from one of “I am a resource” to one of “I am a care partner.”
“Resource” mindset
I should be there for my loved one all the time. Any time I take for myself is selfish.
“Care partner” mindset
I can set boundaries and ask for help when I need it because I am not alone in this process.
“Resource” mindset
I shouldn’t say anything because I fear that others will be upset with me, or my loved one will not receive the best care.
“Care partner” mindset
I have a right to ensure that my loved one is receiving the best care and support, and I am free to proactively voice my concerns.
“Resource” mindset
I will accommodate all of the recommendations of my healthcare providers.
“Care partner” mindset
I can actively participate in planning for the future health of my loved one, and identify what I can and cannot manage.
“Resource” mindset
I should stay quiet and not voice my point of view.
“Care partner” mindset
My perspective is valuable in reporting on and suggesting possible changes to treatment or care plans.
“Resource” mindset
They are all depending on me, and I can’t let them down. Better I not say anything that will create conflict or rock the boat.
“Care partner” mindset
Everyone in the family has a potential role to play. I can voice my needs and the needs of the person in OUR collective care.
“Resource” mindset
I should be okay managing all of the care needs of my loved one.
“Care partner” mindset
I can express when I am not comfortable or feeling unsure when asked to undertake specific care tasks.
A checklist that caregivers can use for initial or repeat visits with physicians.
For when first meeting with a pharmacist, sharing an update or filling a new prescription.
Helps caregivers obtain written permission to have their loved one’s healthcare information shared.